You are on the waitlist, trying to be patient, so now what? You have researched all the different programs that the Medicaid Waiver programs offer, but the wait is like watching paint dry on the wall! So, let’s summarize everything we’ve talked about and learn some tips and tricks to make the most of your time and efforts throughout the waitlist process. Here are the most important things to remember!
10 Important Tips While Waiting for Medicaid Waiver Programs
Think about the future! While you might not need assistance and supports now, think about what could happen a few years down the road. What about when your child graduates from high school? What will happen as you get older and are not as able to care for them?
Put your name on all waiting lists as soon as possible – even if you are not sure if you are interested or if you will qualify.
When your name comes up on one of the lists, keep in mind that you cannot use more than one program at a time (for example, you cannot have CLASS in addition to HCS, you must pick one).
Accept services from the first program that becomes available. You can use this until the one that helps you the most becomes available and then drop the one that you took first. You can only use one at a time, but you can switch when your name comes up.
When applying for the waiting list, make sure you detail your child’s weaknesses and deficits. Yes, we are so proud of what they can do, but to receive services, emphasize what they cannot do without your help. This will help you get the services you need faster.
For every call, make sure you note the agency name, the name of the person you spoke with, the date, and a phone number. You want to keep a record of your communications!
Make sure you periodically call and check on your position on the waiting list at least once a year. Do not be afraid to bother people! You may have to be a little pushy.
If you move to a different county in Texas, you need to call and notify the agency of your new contact information. If you cannot be contacted, you will be removed from the waiting list. Also, if you move out of state you will be withdrawn from the waiting list, but other states have waiting lists as well.
Network with other parents and professionals in the field! This way you can find out what programs they have, what they have tried, and what works.
There are other programs out there too! Depending on you and your child’s particular situation and needs, you may qualify for other programs and services. Make sure you talk with your case worker (before you receive services) or case manager (after you receive services) to find out about these!
*Written by: Andrea Murray, MA, BCBA